National Health MissionMaharashtra

Sickle Cell Disease Control Program

Sickle Cell Anemia is a serious condition in which the red blood cells can become sickle-shaped (that is, shaped like a "C"). Normal red blood cells are smooth and round like a doughnut without a hole. They move easily through blood vessels to carry oxygen to all parts of the body. Sickle-shaped cells do not move easily through blood vessels; they are stiff and sticky, and tend to form clumps and get stuck in blood vessels. The clumps of sickle cells block blood flow in the blood vessels to the limbs and organs. Blocked blood vessels can cause pain, serious infections and organ damage.

As per DMER draft proposal of June 2008 Sickle Cell Disease Control program is implemented in 21high prevalence districts in phase wise manner by NRHM since 2008.

Phase I - (2007-08) : Thane, Nashik, Nandurbar, Amravati, Gondia, Gadchiroli,Palghar (New District Established in 2014)
Phase II - (2009 -10): Bhandara, Nagpur, Chandrapur, Wardha, Yavatmal
Phase III - (2010-11): Dhule
Phase IV - (2011-12): Jalgaon, Nanded, Washim, Akola, Bhuldhana, Aurangabad, Raigad.
Phase V – (2012-13): Hingoli (as per order of Hon. Lokayukta, Maharashtra State, Hingoli district is included)

Objectives and Goal of the program:

  • Creating Public awareness.
  • Screening general population. (Target age group 1 to 30 years, Pregnant women, family members, Symptomatic individuals of all ages)
  • Training of Medical officers & other paramedical staff at PHC, RH & DH for testing, counselling & treatment.
  • Equipping hospitals with electrophoresis machines.
  • Providing screening facilities at Primary Health Centre, Rural Hospitals, Sub District Hospital & District Hospital.
  • Referring positive cases from Solubility positive samples for electrophoresis test to nearest Electrophoresis testing Centre.
  • Identifying carrier & sufferer.
  • Issuing yellow cards to carriers and red cards to diseased individuals.
  • Counselling carriers& sufferers for marriage and family planning &Sufferers for importance of regular treatment.
  • Providing Prophylactic & Symptomatic treatment at Primary Health Centre, Rural Hospitals & District Hospitals.
  • Speciality treatment at District Hospital & Medical College.

Role of NGO's in Sickle Cell Program in districts

  • To Create Awareness about Sickle Cell Disease.
  • To motivate community for Solubility test.
  • To transport Solubility positive blood samples for electrophoresis test.
  • To register Sickle cell sufferer & carrier.
  • To Counsel Sickle cell sufferer & carrier for marriage and family planning. Sufferers are counselled for regular treatment & Counselling for prenatal diagnosis (CVS)is given to eligible couples.
  • To distribute colour coded cards. (Red-Sufferer, Yellow-Carrier, White-Negative)
  • Home Visits to Sufferers.
  • To prepare& distribute IEC in local/tribal language
  • Pregnant mother to counsel for early registration & prenatal diagnosis.
    Arrange meetings & testing camps for Schools, Collages & Ashram Schools etc.
District Name of NGO Appointed
Thane Navoday Gramin Sanstha, Jawhar, Thane
Nashik Gauri samajik Sanstha, Nashik
Nandurbar Jijau Maratha Mahila Samaj Unnati Mandal, Nandurbar
Gondia Prabuddha Vinayaki kalyankari Sanstha, Tiroda, Gondia
Gadchiroli 1.Arogyadham Kustharog Nirmulan Sanstha, Kurkheda, Gadhciroli
2. Ektal Samajik Shishan Sanstha, Gadchiroli
Nagpur Aniket Bahuuddeshiya Sanstha, Nagpur
Wardha Shri Namdev Maharaj Bahuuddeshiya Shikshan Sanstha, Wardha
Chandrapur Sarvodaya Yuvavikas Sanstha, Chimur, Chandrapur
Bhandara Bharatiya Aushadhi Anuisandhan Sanstha, Bhandara

Institution wise Testing & Services to be provided

In this program to achieve the objective basic screening test is being made available at all the health institutes in project area. Positive samples in basic screening test (Solubility test) are sent to Electrophoresis centre for confirmatory test i.e. Electrophoresis test

Institution wise services to be provided in SCDCP are as follows

Sr. No. Institute Services to be provided
1 PHC
  1. Free Solubility testing
  2. Counseling
  3. Regular Health check up of Sufferer
  4. Prophylactic & Symptomatic  treatment to be provided
  5. Maintenance of  records & register
2 RH/ SDH/ WH
  1. Free Solubility testing
  2. Free Electrophoresis testing (only if Electrophoresis centre)
  3. Counselling
  4. Regular Health check-up of Sufferer
  5. Prophylactic & Symptomatic  treatment to be provided
  6. Blood transfusion to Sickle Sufferer if blood storage centre or blood bank is available
  7. Maintenance of  records & register
3 DH
  1. Free Solubility testing
  2. Free Electrophoresis testing (Electrophoresis centre)
  3. Counselling
  4. Regular Health check-up of Sufferer
  5. Prophylactic & Symptomatic  treatment to be provided
  6. Blood transfusion to Sickle Sufferer if blood storage centre or blood bank is available
  7. Specialty treatment
  8. Maintenance of  records & register
  9. HPLC Test (of HPLC Centre)
  10. Telemedicine referral

Institutions involved at districts in SCDCP

Sr. No. Name of District No. of PHC'S No. of RH/SDH No. of DH No. of WH No. of Medical College No. of Electrophoresis testing centers
1 Thane 53 13 1 0 1 2
2 Palghar 37 10 0 0 0 3
3 Nashik 52 13 1 0 0 4
4 Nandurbar 58 14 1 0 0 5
5 Amravati 56 13 1 1 0 7
6 Gondia 39 12 1 1 0 5
7 Gadchiroli 45 12 1 0 0 7
8 Nagpur 49 11 0 1 2 4
9 Wardha 27 8 1 0 0 3
10 Chandrapur 58 13 1 0 0 5
11 Bhandara 33 9 1 0 0 3
12 Yavatmal 63 17 0 0 1 5
13 Dhule 41 8 1 0 1 3
14 Jalgaon 77 20 1 0 0 7
15 Nanded 65 16 0 0 1 5
16 Washim 25 7 1 0 0 2
17 Akola 30 6 0 1 1 3
18 Buldhana 52 15 1 0 0 5
19 Aurangabad 50 13 0 0 1 4
20 Raigad 52 13 1 0 0 4
21 Hingoli 24 4 1 0 0 2
Total 950 237 15 4 8 88

State Physical Report

Physical Report
Year Total Solubility Test Total Diseased Total Carrier
2007-2008 15310 - -
2008-2009 68590 4 74
2009-2010 421246 1056 11940
2010-2011 1182057 2876 24005
2011-2012 3121263 3065 37785
2012-2013 2155666 2040 25217
2013-2014 3847479 2262 32895
2014-2015 3063505 2194 28949
2015-16 (April 2015) 134688 84 954
Total 14009804 13581 161819

State Physical Report

Physical Report
Year Total Solubility Test Total Diseased Total Carrier
2007-2008 15310 - -
2008-2009 68590 4 74
2009-2010 421246 1056 11940
2010-2011 1182057 2876 24005
2011-2012 3121263 3065 37785
2012-2013 2155666 2040 25217
2013-2014 3847479 2262 32895
2014-2015 3063505 2194 28949
2015-16 (April 2015) 134688 84 954
Total 14009804 13581 161819
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